“Phenomenal!” “Amazing!” That was the reaction of supporters of EDS UK when the charity posted on their Facebook page about a really easy way to donate, at no cost to themselves, called, of course, Give As You Live.
From one simple post, many supporters were blown away by such a simple and effective way to help. “Shopping online, with a conscience = result! Why wouldn’t you?!” said one fan.
EDS, Ehlers-Danlos Syndrome, is a genetic connective tissue condition that is a multi-systemic syndrome. This means the symptoms can affect practically the whole body with common symptoms including joint hypermobility, stretchy skin and tissue fragility.
The charity, EDS UK, was set up in 1987 to support, advise and inform those living with Ehlers-Danlos Syndrome and help them to live a full, active and positive life. The funds raised from Give As You Live, and all their other fundraising activities, help to increase understanding of the disease with the medical profession, friends and families and the wider community. Their aim is to make ‘our invisible, visible.’
The charity’s post on Facebook and further social media activity on Twitter certainly seemed to provoke a lot of interest.
One supporter, Mary, explained how it all works to other EDS UK Facebook fans…
“The mechanics are easy. You download the small piece of software onto your laptop or desktop (I have a Mac and no problems at all), which when you shop online recognises the websites that have signed up to the scheme. A banner appears across the top of the webpage you visit – everywhere from Sainsbury’s and John Lewis to more unusual websites. Click on the banner to turn the link on for your purchase and it’s job done. Every few days you receive an email with your total. This is the easiest, most stress free way of fundraising I have ever experienced.”
Mary – we couldn’t have put it better ourselves.