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About SOFT UK

Charity number: 1002918

Since 1991 SOFT UK has been supporting families affected by trisomy 13 (Patau's syndrome), trisomy 18 (Edwards' syndrome) and related conditions. stages following a prenatal diagnosis - whether a family decides to terminate the pregnancy early or allow it to continue. SOFT UK also supports those who are caring for a baby or child with these conditions (often living with multiple and profound disabilities), and families if a bereavement occurs. As a membership organisation, families can share their experiences through the SOFT UK website, members' magazine and annual members' weekends. The support is offered to all members of the family, including siblings of the affected child, for as long as required.