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About STURGE WEBER UK

Charity number: 1016688

Sturge Weber UK supports those affected by Sturge Weber syndrome, a rare neurological condition, by helping to raise awareness of the condition amongst both parents/carers and professionals. We hold a family weekend every 18 months where families can meet and support each other and listen to professionals speak about the syndrome. The family weekends are heavily subsidised so that nobody is excluded by financial limitations.