You make a difference to the EB Community
Thanks to all of your fantastic efforts, we have been able to raise over £250,000 in our #FightEB appeal; however, we must work together to ensure that the fight does not end. Donate directly or get in touch (firstname.lastname@example.org) for fundraising ideas. Help now - there is currently no cure.
Check out our Members stories and watch our short animation to learn more about EB - a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.Read the full story
See our #FightEB stories These are the stories from the EB Community and why we continue to #FightEb
What your donation will fund
The money raised by everyone who takes part in the #FightEB appeal could help improve the health and wellbeing of people living with EB, fund specialist healthcare to provide high quality holistic care, and support pioneering research that is leading to improved treatments for this complex and distressing condition.
- £10 could buy a soft cushion for use at a nursery
- £25 could pay for one hour of enhanced EB nursing
- £100 could help an EB sufferer travel to an appointment
- £250 could provide an EB carer with new essential equipment
- £500 could sponsor a family to pay for a subsidised holiday
- £1000 could go towards helping a family with bereavement costs
The #FightEB Story
Living a life free of pain - this is the wish of those suffering from EB (Epidermolysis Bullosa), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.
There are an estimated 500,000 people suffering from EB worldwide, and one in 227 of us carry a defective gene that causes the condition.
EB is more than what you see
In its most severe forms, EB is fatal; even in its mildest forms it can still cause lifelong disability and pain.
Blisters continuously form and have to be drained and dressed daily; a painful process that can take several hours.Read more
The building up of scar tissue from repeated blistering can cause fingers and toes to fuse together, which can also lead to an aggressive form of skin cancer.
The overall impact of EB affects the whole body and psychological challenges are inevitable.
Learn how the EB Community is fighting back
Click through to watch and read stories from across the EB Community and learn how, despite having this debilitating condition, they don't let EB defeat them.
The purpose of #FightEB
The main purpose of #FightEB is to make EB a well-known condition, giving a voice to those suffering and providing a platform for people to do something to help.
Donate today and join the #FightEB movement
The #FightEB campaign will run until Wednesday, 28 February 2018, coinciding with Rare Disease Day.
Together, we can beat EB