Congratulations to #Fight EB our charity of the month this November!
So far we’ve helped raise over £16,000.00 for #FightEB just by shopping, ordering, booking and fundraising online via Give as you Live.
What exactly is EB?
Epidermolysis Bullosa is a group of genetic skin conditions which cause the skin to blister and tear even with the slightest touch. Individuals born with EB are often known as ‘butterfly children’ this is because their skin is just as fragile as the wing of a butterfly.
Painful open wounds and sores form where this exceptionally fragile skin is damaged – in some cases, internal linings and organs are also affected. EB can leave suffers with complications such as infections and painful scarring. Tragically, certain types of EB can be fatal in infancy and others are severely life-limiting. It is estimated that there are more than 5,000 people living with EB in the UK, and 500,000 worldwide.
James Dunn’s Story:
There are three main types of Epidermolysis Bullosa:
- EB Simplex (EBS) is the most common form of epidermolysis Bullosa. EBS is characterised by a lack of adhesion of the skin directly above the basement membrane (the basal layer). Approximately 70% of people with EB have EBS.
- Dystrophic EB (DEB) is a genetic skin condition characterised by a lack of adhesion of the skin under the basement membrane. Approximately 20% of people with EB have DEB
- Junctional EB (JEB) is characterised by a lack of adhesion of the skin through the basement membrane. Approximately 10% of people living with EB have JEB.
What can you do to help?
- Give as you Live – Shop online & every purchase will raise free funds!
- You can Text FIGHTEB to 70300 and give £5 (Get bill-payers permission, standard network rates apply)
- You can Donate to Fight EB via the website >>
What will my donation mean to EB?
– £5 a month could provide 12 children with a special toothbrush which makes a real difference to very delicate gums.
– £10 could buy two pairs of specialist socks that can reduce blistering
– £15 could buy a special needs feeder system for babies who have blistered mouths
– £25 could pay for one hour of enhanced EB nursing
– £100 could provide a support grant for a family affected by EB